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Category: Rare disease

Medical Sathi / Blog / Disease / Rare disease
zolgensma
Disease SMA - Rare disease

Zolgensma: India’s Tryst with the ₹17 Crore Miracle Drug for SMA

  • By Dr. Ashish
  • August 30, 2025

Imagine being told that a single injection could save your child’s life – but it costs ₹17 crore (about $2.1 million USD) for one dose. This heart-wrenching scenario is

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Rare disease

Understanding Spinal Muscular Atrophy: Causes, Symptoms, Treatment, and Prevention

  • By Dr. Ashish
  • January 13, 2022

  Introduction: Shedding Light on Spinal Muscular Atrophy Spinal muscular atrophy (SMA) is a rare genetic disorder that impacts lives worldwide, affecting motor neurons and muscle function. As of

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Healing happens faster when hearts come together. Your support can ease this patient’s journey. Let’s unite in hope and strength—because we’re always better together, especially in times of need. #Better Together

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